Each month, I check in with my Lyme literate Naturopath (Dr. Julie) to discuss how my body is responding to treatments and make changes or additions. Over the past ten months, I have seen such dramatic improvements and even though every day is still very difficult, I am encouraged to persevere. Much has changed since I shared about my Lyme protocol here and here, and I’d love to share with you how I’ve been walking through this past fall and winter so you can get a sense of what this journey is like.
If you’ve been following along on Instagram, then you would’ve seen that in October, I did a round of IV antibiotics. Attacking Lyme is definitely a dynamic process; our approach is constantly changing. I feel so fortunate to have access to such experienced Lyme literate doctors and (from what I’ve researched) some of the most effective treatment around. It can be really overwhelming most of the time, but I strongly believe that the combination of conventional and herbal medicine is effective for me. I plan to do another round of antibiotics this spring.
The IV antibiotics are being used as a pulse therapy; I do about 8 days in a row and then take a break. The antibiotics are always in conjunction with herbal antimicrobials, super probiotics, and LOTS of detox and immune support. For example, because the antibiotic I used is a cell wall buster, I did several Myers cocktails (ie. vitamin IV) and MAH (ozone) IVs to enhance the attack on microbes once their defence was down. I increased my probiotics during this period of time to a full pack of VSL #3 each day (450 billion).
The week following my first round of IV antibiotics, I started to feel really anxious. My brain felt like it was all mixed up and I just couldn’t put the pieces back together. It wasn’t until I saw Dr. Julie in follow up that I even knew that the buzzing, high strung feeling and stress was probably a herx! So I increased how often I was taking Burbur-Pinella, got in the sauna every day and made sure not to skip my CBD oil.
In terms of herbal antimicrobials (Nutrimedix brand), the kids and I have felt really good with Samento + Banderol for the past few months but we’ve also pulsed between those, Cumanda + Houttuynia, and Enula + Mora. These ones follow the same idea where I take 1 drop twice a day of each on day one, 2 drops on day 2, etc. with the kids increasing their drops every other day. After 2 weeks at the full dose (30 drops for me, 15 drops for the kids), we’ll switch to a different combo working our way up more quickly to a full dose for 2 weeks. Keeping track of it all is enough to make this Lyme brain spin for sure! Zach’s super helpful with keeping us on track and I’ve written all the amounts on my calendar, but I still mess it up often.
Brain fog, severe exhaustion, and nausea have still been a struggle these past months. I’m so thankful that my Rheumatologist has signed off on returning to work on partial medical leave because my Lupus markers and symptoms have gotten worse this past year. It can be hard to admit that my autoimmune disease is in the severe category (systemic causing organ failure). She actually recommended full time medical leave but I find so much joy in my job as a Biology teacher that I push myself to the max of what I am able to.
So in November, I returned part time for the new Health Sciences program (the only one in Canada) where I teach the Biology 12 (now called Anatomy and Physiology 12) course and facilitate pre- and post- discussion with BCIT’s PreHealth program. Through BCIT, students get to do a lab course as well as a case study course focusing on lung cancer, heart disease, and diabetes. I’m absolutely thrilled to have been involved in the launch of this program and every day I pray that my brain allows me to be as involved as my heart is.
It’s a lot of effort to have someone watch the kids while I go to weekly appointments so I try to schedule them all on the same day each week. I also use the infrared sauna about 5 nights a week; we are so fortunate to have found a great deal on one and squished it into our storage room. It has helped with detoxing tremendously.
With all this support in place, I’ve been able to do more neural therapy to break up scar tissue and interference fields. We’ve done this a handful of times now in my mid/upper back, trapezius, and base of skull with each time my muscles feeling (and looking!) noticeably more relaxed. But immediately the first couple of times, I had trouble even standing up and couldn’t drive myself home because I was so dizzy and nauseous. Thankfully, my reactions have improved with each treatment.
To help suck up all these toxins making me feel so lousy, I tried Cholestyramine which acts kind of like a filter. The only problem is that it’s like drinking fish cement. That’s where the hesitation comes in… but it really helps with the brain fog. What it does is bind to fat and help flush it out of your system. Since the neurotoxins are fat soluble, these get flushed with the fat (that toxic fat needs to be replaced with lots of healthy fat like coconut oil, avocados, and fish oil). Long story short, this treatment didn’t work out well for me; I couldn’t deal with the digestive upset (and trying to swallow cement that tastes like fish doesn’t help). I switched to activated charcoal instead.
Recently my appetite has been severely reduced and I feel so unwell that taking my supplements is difficult. I’m not currently following the ketogenic diet but I keep my grains very minimal and avoid my food allergies (mainly gluten, dairy, corn, soy) as well as inflammatory processed foods and sugar. I’ve recently shared about my concern over healthy eating here and I’m working to keep the emotional side of my diet just as healthy as my food choices.
I’m still not well enough to run errands or attend church and bible study regularly. I hardly ever have the energy to hang out with friends and I’ve missed out on many celebrations. It’s really hard to feel like I’m missing out on life in order to avoid spending the next day(s) in pain. But my Mom always said that no one knows your body like you do so you have to listen to it and take good care of yourself. If you flare because you pushed it, everyone will just say that you should’ve listened to your body. Yep, she’s completely right.
The next thing on my radar is heavy metal chelation following the replacement of metal dental fillings. After reading Yolanda Hadid’s book, Believe Me, I realized that perhaps my dental issues should be looked into. I have really bad TMJ pain and can actually feel the build up of infection under my ears down my jaw. I know this is something that will contribute to my overall healing and I’d like to get it done sooner rather than later but because I can’t do this while breastfeeding, I have to take one for the team and be patient. But dang it’s hard to be patient with Lyme treatment!
I know I say this a lot, but I really appreciate you following along with my healing journey and caring to understand what it’s like to live with Lupus and Lyme Disease. Your support has been such an encouragement in what would otherwise be a dark time. I sense God’s presence and am resting in His sovereignty. I will never understand why things unfold the way they do, but I know that I can trust that God is carrying me through it and there is nothing that could ever happen to me that would shake my faith. One day I will experience the fulfillment of His promises, healing and all.